Right to Respond

Healthwatch is committed to providing a transparent and honest view of health and social care services. This is your opportunity as the health or social care provider to have your say on comments the public have left. It is designed to be constructive and allow both sides to have a fair and equal say in the matter so please:

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Remember, your response will be seen by everyone who reads your organisation's comments, not just the original reviewer. Your reply is a good opportunity to acknowledge any comments received.

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Original feedback for

East Coast Community Healthcare (ECCH)


ME/CFS Service Underfunded

The staff are incredibly kind and understanding. They want to help those with ME. However they have little to no resources to do so. I have rated 5* because I don’t want the staff to feel like they haven’t done enough. They have done what they can with the resources available to them. They can’t keep a patients file open longer than 3 months. Referrals or re referrals take 4-5 months at the moment. They only give general pacing advice. Which the patient normally has to figure out on their own anyway. I have had more support from the ME Charities such as the ME Association. If you have ME and are reading this please go to the ME Association website as it has lots of useful information. Please can the ICB allocate more funding and resources to this ME Service so that people with ME in Suffolk and Norfolk no longer have to suffer alone.