Ipswich Integrated Delivery Team (IDT) - Norfolk & Suffolk NHS Foundation Trust

i have been referred by my GPs five times in the last two years. i have been through access and assessment to IDT being told i have pts. I had 1 meeting with a care coordinator who then left, then I had 1 with a cpn and then they discharged me. i had no medication review and my GP referred back again and they rejected the referral. i started having therapy with a psychotherapist who said i may have bipolar after 2 sessions and mind then referred me back to IDT who again rejected the referral.

My GP referred me again following an overdose and they ignored it. Mind and my GP again referred me and i had an assessment with access and assessment who referred me back to idt and said they couldn't understand why idt had not carried through their recommendcations from last time.

IDT again rejected the referral, diagnosed me with an anxiety disorder (although they havent told me that, just my gp) and referred me to wellbeing, despite me saying I had been referred there 4/5times before and they have never been able to help me just offer group anxiety workshop. I have been self-medicating and have overdosed twice but have now given up asking for help as i realise i wont get it.

I have friends who have been through NSFT, and their treatment has always shocked me but i didn't realise how bad it was until i needed help and despite my dr and 3 other professions involved in my care, including their own staff at access and assessment saying i need idt support, they refuse to accept me as a patient.

I know self medicating is a risk but i feel its less of a risk than taking nothing and dealing with intrusive thoughts and flashbacks where i have no control. This service is not fit for purpose, let alone dealing with vulnerable people in huge distress.

The staff do not care and i often had to continuously ask because things would not get done or followed up, nobody seemed to know what anyone else was doing, there was no care plan and it was like they weren't even listening half the time and certainly had no empathy.

I have been made to feel like i am exaggerating my symptoms or it is in my head and as most people with mental health problems knows, speaking about the things that cause you trauma and distress is very hard, i have done that at least 6 times in different assessments with access and assessment, idt and wellbeing, to have the door slammed at the last hurdle everytime.

when i was first referred i was having panic attacks but could go certain places and could go if i was with someone, i did not have suicidal thoughts. Now i do not go out at all even with someone. I cannot even go to hospital in an ambulance for my kidney problems because of my anxiety and i would rather be ill and in pain than go out, i have flashbacks and intrusive thoughts daily and feel suicidal daily because I cannot cope living like this for the rest of my life and I don't think I will ever get help from these people.

All they want is to get people off the list asap and its shocking the amount of people who have committed suicide after being let down by these people and coroners always say things must change but they never do.

I was suicidal and reaching out for help. I was greeted on the telephone almost saying there was nothing they could do to help.

Was diagnosed with BPD about 3 years ago go to recently I've been getting worse and the service has been collecting me I've been getting no help I've asked for a medical review you 6 months ago go and I still haven't had it I'm now making a formal complaint of neglect.

Care coordinator is a waste of space, does what he wants, wants to change care plan without mine or my cared fors permission. Doesn't attend appointments with psychiatrist, I requested a carers assessment April 2019 still haven't had one, care coordinator not interested in carer appointments, last 10 minutes if that, that's when he decides to make an appointment, phone contact during covid19 are a joke

From October 2019 to May confusion also frustration lies and no help given and no contact made. Then in May a phone call and discharged while still suffering. When I asked for an apology for distress confusion anxiety frustration caused by the nurse practitioner and IDT The Nurse Practitioner said none given and that’s life!

My care plans since 2015 have been done without my knowledge are incorrect and just been copied and pasted. The review dates never reached and one was over 1 and a half years old and done by someone anonymous from the older persons team and I'm not even under that team. I only found this out by asking for my records! My care coordinator refused to show me a care plan. I'm so disgusted I am going to ask to be discharged from this team as incompetent doesn't even begin to describe my experience of them. Care coordinators go sick leave retire and your left for months with no named person. Phone calls are not returned. The team manager won't speak to you. The caveat of first do no harm does not apply to Ipswich idt. They have harmed me and I wish I had never got involved with them.

Can't fault the care my husband received following his recent discharge from an NSFT in-patient unit. The care co-ordinator was kind and efficient. He visited my husband in hospital, rang him the morning he came home and kept in regular contact for several weeks afterwards. He sorted out some issues to do with my husband's medication and physical health, immediately and without waiting to be asked. It was extremely reassuring to us both to be looked after by someone who was both caring and totally professional. Sadly, he has now moved to another team.

I went because I needed support with my housing situation and my mental health, over the last month I have been feeling suicidal. I have a support worker for the housing who called me whilst I was suicidal and she started singing be happy be happy down the phone, A month later and after lots of calls from my GP I still have no support. I feel like they don’t care and they don’t understand or listen about how I feel and how I am struggling to cope. When I spoke to the support about my suicide I was told I was stupid and I should be put in a room with people who have lost people through suicide so I would know how it would feel. My GP called and said that I would get a call within 48hrs from IDT but never received a call. I feel I would benefit from a care co but this hasn’t even been considered.

My relative has been under service for over 7 years and the last 2 years she has been living in independent accommodation, however she is not coping to keep herself safe and live a meaningful life, always lonely and unable to keep home habitable. When concerns raised with Care Co no action taken. I don’t feel listened to and even made to feel a nuisance. Care co repeatedly tells me to ‘ let him do his job’. My relative’s Well-being is not considered even though I have provided information to Care co that she is bored and sad due to being excluded from society. She is unable to communicate her problems and when care co has met with her he tells her she is doing ‘ really well’ and she repeats this back which leads to no further support being provided or discussed even. It is heart breaking to see her struggle in a dirty home and unkempt. Family pick up the pieces and are experiencing carer breakdown for the sake of an effective assessment of her strengths and weaknesses and delivering the care she so desperately needs. I feel very let down by NSFT. They say they listen to clients and Carers but we do NOT feel listened to so how are NSFT able to provide effective care?

Clearly insufficient resources and staff to provide a safe service. A number of managers, who come and go, but little actual treatment/ long-term effective support. And then, another care Co Ordinator leaves. We have had four in last two years - with long gaps - and the latest, after 4 patchy months, is also now going.