Norfolk and Suffolk NHS Foundation Trust (NSFT)

ASD son. We were told to remove all comfort for my son. Also we were making the world unsafe for him by keeping him in a bubble. More concerned on themselves.

Referral from school to CAHMS turned down and suggested I go through GP to seek referral to PMHW. Referral to PMHW successful.. Initial visit, lots discussed and I felt hopeful of progress re my son being made. Things were promised but at the following meeting had not happened or been forgotten or delayed.. Future meetings resulted in the same scenario. Given hand outs re slee issues re my son.. Referred for VIG resulting in 3 videos and follow up.. More promised by PMHW following VIG. CAF forms eventually sent to SENCO at sons school. CAF forms completed by SENCO and myself on 9th Sept. Sought input from PMHW to complete the forms. Promised following week this would be sorted as PMHW had a meeting at the school. Meeting did not happen and SENCO was unaware there was a meeting anyway. SENCO tried several times to call/email PMHW to no avail.. As did I.. Still no response.. Asked to speak to another PMHW and am again awaiting a response..

Do not feel anything has been addressed or resolved properly especially in terms of contact, do not hold any confidence in them at the present moment as I feel let down and ignored.

The NSFT Service User Council used to meet monthly bringing together service users and senior staff. No reason given, disbanding it left a gap in how NSFT keeps in touch with service users.

Really positive, inspires a lot of hope.

My care co-ordinator is very good but I don't have/have not seen a careplan. I'm not impressed by Dr. (Name removed) as she has had a go at my sister during my appointment. More than once I've asked for a copy of a letter & I was never actually told about a new diagnosis. I found out accidentally during a conversation with my care-co. I can't knock her at all she is very good The recovery college has been very good & useful and I will continue to use he service.

I was admitted to Woodlands as i was suffering from anxiety and obsessive negative thoughts and whilst the staff there were lovely i had no therapy and was on the same medication i was on at home so i didn;t see the point of being there. When i was released i did feel a little better and was told there would be no follow up as i was not ill enough but to go to see a link worker at my surgery. He recommended to contact the wellbeing service which i did and they said they could not help me as i was still under the hospital.

I called them and said this was not the case so they looked into it for me. They said was under the IDT team so they discharged me and said the IDT team should be in touch, I was released from Woodlands at the end of April and 3 months later i have heard nothing. I am still suffering althought be it not as badly but feel like i;ve been given some pills and forgotten about because "I'm not bad enough". Well that's ok for them to say but they are not me and do not know how badly i feel. All i want is some help to deal with this and ensure it does not get as bad again but it feels like no one really cares.

Property was kept in a locker room and some peoples cosmetics disappeared. My phone charger went missing. Food was pretty good though.

I felt completely ignored from the start. Nobody spoke to me, even if I went out to the ward area in the middle of the night - they stayed in the office. Nobody explained any treatment plan, I received no treatment at all and had one appointment with a psychiatrist in the 2 weeks I was there which he stopped because I was crying. I was discharged with a bit of paper with my diagnosis written on it. That was a shock; there was no discussion with me at all about the diagnosis and I didn't know what it meant. Diagnosis later overturned by a psychiatrist.

A family member has been using mental health services for 3 years but it has been very difficult and if I could give a zero rating I would. You don't know what will happen each day and it is impossible to talk to a psychologist or the team at the hospital. Communication between the family and the team is very difficult. As a carer it is important to be kept involved.

Our service refers people to the integrated delivery teams in Suffolk but then those people are waiting so long to go through the assessment process that the opportunity the help them is being lost.